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Naomi1
#1 Posted : Monday, January 28, 2013 9:39:29 PM Quote
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Dear all For months now my left wrist has been giving way very painfully. It kind of feels like the tendon snaps or something. Usually it's when i'm doing something like turning a knob or tap but sometimes it happens with just a slight movement of the wrist. Now it's happening in my ankle too. I had to walk a short distance today and it happened 5 times. I thought I wasn't going to make it home. Is this type of thing usual for RA and what should I do. It's 5 months until i next see the rheumie.
suzanne_p
#2 Posted : Tuesday, January 29, 2013 11:31:07 AM Quote
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hi Naomi,

my left wrist is the one joint that is painful, and i'm left handed to boot.

if i turn a tap wrongly, or do too much cleaning etc. i can get a sharp pain and i pay for it later. i have a new steam cleaner which is fantastic, but you have to press the trigger to use it and if i get carried away with it my left wrist and hand in general really plays up for a good few days.

i think this is the one joint where i probably have some joint damage, and it's never been suggested to me that there is anything more can be done.

i am sorry to hear it's also affecting your walking, perhaps a call to your Rheumy Nurse might help.

Suzanne x
zena_mary
#3 Posted : Tuesday, January 29, 2013 5:15:41 PM Quote
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Hello Naomi, I think Suzanne is right, I would call the nurse and explain what is happening.
I have trouble with my knees and right ankle doing this, but most other joints are not too bad at the mo.
I did have much more of this thing happening when my ra was more active, perhaps your ra may be more active at the moment.
Its worth getting it checked out especially when its causing you so many problems.
Best wishes Zena xx.
jenni_b
#4 Posted : Wednesday, January 30, 2013 12:16:53 PM Quote
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Ow!
You could do with some sexy splints my friend.
Thinking positively this, together with some physio/ hand therapy can stop this happening so much.
Get referred through ringing the nurse specialists or the gp. You need an OT assessment I think
I've got a few splints and the air cast ankle ones are very good.
http://www.physioroom.co...e_Brace/2030/36207.html

My wrist ones I haven't find as helpful
The bar hurts up inside. Night resting ones I find too hot.
I can tolerate the ones that just do thumb and wrist better, but you might find completely different for you.

Jenni xx
how to be a velvet bulldoser
Naomi1
#5 Posted : Wednesday, January 30, 2013 6:46:59 PM Quote
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Thanks everyone. I have wrist splints and they do help. I know I need to seek help with this, especially as the blooming ankle gave way at work twice today. My boss didn't see but some colleagues did and I'm worried I'll be seen as a hazard at work (I work with vulnerable adults for the NHS). I have an OT appointment in a couple of weeks so will definitely bring it up then if I can wait that long. I'm really scared that a steroid injection will be suggested as I have an irrational terror of them. People say oh just get on with it and it will be over soon but they don't understand how scared I am. I suppose pain and the necessity of keeping my job will force me to face it in the end if this is what's suggested. I hate RA! I know there are others so much worse off than me but I need to have a moan.
jenni_b
#6 Posted : Thursday, January 31, 2013 8:18:26 AM Quote
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The steroid injection hurts for a tiny moment
But I completely understand fear
It doesn't matter what anyone says!

Can someone go with you?
I'd come :)

There are ways of dealing with fear
Telling yourself its irrational doesn't help much IMO
It considers this a threat
Your body and brain is reacting differently, so needs to alter its response to this 'threat'

I've got some thing to post on panic
In the meantime- there are these elastic resistance bands
The physio did them with me to strengthen my joints

Love jenni x
how to be a velvet bulldoser
sylviax
#7 Posted : Tuesday, February 05, 2013 7:20:00 AM Quote
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Hi Naomi - ouch! Nasty to have ankle giving way - and dangerous too. I know you don't like sticks but they can give you more confidence, when moving around. You shouldn't be seen as a health and safety hazard - the NHS should be seen as a good employer for goodness sake!!!!!

Much love - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
Kathleen_C
#8 Posted : Tuesday, February 05, 2013 3:35:24 PM Quote
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I had a similar problem with my ankle, and my rheumy consultant suggested I should try to wear footwear which gave the ankle some support, eg ankle boots. She also organised a walking stick for me. Boots certainly helped.

Kathleen .

Naomi1
#9 Posted : Tuesday, February 05, 2013 9:30:20 PM Quote
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Thanks everyone. I'm so pleased that I see the podiatrist a week on Thursday. I'm now having problems with the big toe on the same foot. I get the most excruciating pain like something is pressing on a nerve. OMG it hurts! It happens when I'm walking or leaning forward on it. Then it goes away and feels fine. Confused It also makes my foot collapse under my weight. What with that and the ankle I'm really worried about getting through tomorrow at work. I'm making a GP appointment too just to make sure that the ball is rolling on this one. I can hide a lot of my pain at work and tell everyone I'm fine when i'm not (just easier that way) but I can't hide this. Colleagues have seen me stumbling and grabbing the hand rails, which are there for the clients. One of the clients said to me "you can't go on like this", bless his heart. I know he's right. Today was OK as I was resting at home and spent most of the day in bed but tomorrow will be different. I think i'll have a word with my boss and tell her I'll need to sit as much as possible to take the strain off the limb. I don't feel that supported by some of my colleagues so will have to put on my thick skin for the day. Thanks for 'listening' everyone. It helps to get it off my chest. xxxxxxx
Naomi1
#10 Posted : Saturday, February 16, 2013 11:40:53 AM Quote
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I saw the podiatrist for the first time since getting diagnosed on Thursday. A long awaited for appointment. He looked at my Xrays (taken over 20 months ago) and pointed out a bone spur on my painful big toe and showed me other joint damage on the small bones. He thought the leg numbness was due to a trapped nerve in the wonky knee. My lower leg muscles are weak too and he thought that was causing issues with the tendon in the ankle. It's so good to feel that he is acknowledging that there are problems there as I always half expect health professionals to think it's all in my head because this is what happened for 2 years prior to diagnosis. Anyway the upshot is he has given me exercises to do to strengthen the calf muscles (yet more on top of the physio and OT's exercises, sigh....) and he has given me advice on footwear as apparently i'm wearing completely the wrong shoes. He said Ugh to my Uggs. He is ordering me some insoles too and will see me again soon to fit them. He wanted to do a cortisone injection into the big toe but I said no. I draw the line there, Simply cannot 'man up' to this. I know some people will think I'm silly or a baby but I know I can't put myself through it. I wish I could but I can't. They'd have to put me to sleep. The terror is simply too much. Anyway I'm feeling a bit more positive about it all as at least I have some positive action to take now. Best wishes to everyone and I hope you are all winning your RA battles. xxxxx
jenni_b
#11 Posted : Saturday, February 16, 2013 12:13:10 PM Quote
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Well, I don't think you're a baby! I wouldn't have a jab in my toe either!!
how to be a velvet bulldoser
Naomi1
#12 Posted : Saturday, February 16, 2013 6:19:14 PM Quote
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Thanks Jenni.....don't feel such a baby now.
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